Our Mission

Jamal’s Helping Hands will provide client-focused support and educational resources to rare disease patients and their families to assist in the management of their healthcare.

Our Vision

To be a global leader in education, outreach, advocacy and support to individuals affected by rare disease.

Jamal's Story

McKinley "Jamal" Thomas

Jamal was diagnosed with Neurofibromatosis 1 (NF1), also known as Von Recklinghausen's disease, at the age of 9. He underwent 7 surgeries to remove tumors throughout his body, which threatened normal activities of his vital organs and motor skills. 

Despite all of his physical limitations and the mental stress brought on by NF1, Jamal insisted on living a normal life and pursuing his education. After high school, he furthered his quest for learning by obtaining his Associates of Arts from Anne Arundel Community College in Maryland. He then pursued and obtained a Bachelors of Science in Social Work at the Alabama A&M in Huntsville, Alabama. He made such an impact at A&M that the school established a scholarship in honor of him. Ultimately, Jamal achieved one of his biggest dreams by graduating as a Gamecock from the University of South Carolina with a Masters in Social Work with a certificate in Drug Addiction Studies. 

In November of 2013, Jamal began to experience an unusual cough, which was misdiagnosed as an upper respiratory infection. In May of 2014, we unfortunately received the nightmarish news that Jamal had a Malignant Peripheral Nerve Sheath tumor located between his esophagus and aorta, which was a result of NF1. 

After treatment at Johns Hopkins Medical Center and a valiant fight against NF1 and cancer, he was rendered to a wheelchair and given just weeks to live in October 2016. But Jamal did not lose his faith as he maintained that God has the final say and he continued to fight until his passing on March 28, 2017 at the age of 31. 

NF1, while unknown to many, God sent Jamal to be his champion in the fight against this tremendous disease.

The Visionary Behind Our Mission

Valeria McConnell, Founder & Executive Director

Valeria McConnell: A Visionary Leader in Rare Disease Advocacy

Valeria McConnell, a native of Vicksburg, MS, is a distinguished leader with over 37 years of exemplary service in government and contract property management. As a respected member of the Defense Acquisition Corps and the Diversity Leadership Colloquium, Valeria has demonstrated an unwavering commitment to excellence and inclusivity in her field. Her leadership experience is further exemplified by her tenure as the past president of the National Property Management Association.

Driven by a profound compassion for others and a steadfast commitment to making a positive impact, Valeria’s personal and professional journey is deeply intertwined with her faith and values. Her greatest joy comes from her roles as a mother to her sons and a grandmother to her grandsons.

The turning point in Valeria's life came with the tragic loss of her beloved son, McKinley Jamal Thomas, to a rare disease in 2017. In response to her profound grief, Valeria channeled her sorrow into action by founding Jamal’s Helping Hands. This nonprofit organization is dedicated to improving the lives of those affected by rare diseases and aspires to become a global leader in this crucial field.

Currently residing in Randallstown, MD, Valeria enjoys a large and loving family. She is blessed with two sons, McKinley and Thomas; two grandsons; five stepchildren—Terence, LaTyonia, Cheryl, Karen, and Karla; seven additional grandchildren; and three great-grandchildren. Her enduring dedication to her family and her impactful work in rare disease advocacy underscore her remarkable legacy of compassion and leadership.

Meet the 2024 JHH Board

Help Us Change Lives, Today.