Jamal’s Helping Hands in the
News Over the Years!
Our Resources
At Jamal's Helping Hands we strive to provide content that is meaningful, purposeful, heartfelt, and encouraging to our very special community! We understand that everyone has bustling schedules and you want content on demand. If you missed a webinar or just want the slides, you can find it here. Have an idea for a topic you like us to cover? Contact us today and let us know, we love to hear from you!
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Nord's Rare Action Network Representative Tammy Jones provided us with a powerhouse webinar full of helpful content. Be sure you review all the helpful info she provides around Rare advocacy! Click the links below to download the presentations.
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Our guest speaker, Niki Bonet walks us through some of the latest technology being used to advance Rare Disease research.
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We kicked off the New Year with this short informative webinar to assist you in optimizing your doctor's visits.
Listen to our Podcast!
Join our Founder, Valeria McConnell as she hosts our podcast EveryDay Rare. Check out our exciting and informative episodes on Spotify, Podchaser, Podcast Addict, or Podcast Index!
Remember to always take the R.A.R.E. approach!
R- Research organizations, therapies, and trials.
A- Align with the ones that suit you.
R- Register for research.
E- Educate yourself, caregivers, physicians, and others!